3 hours ago · @scraphappy2006 · post chemo and masectomy

I have finished 6 months of chemo and had my bilateral mastectomy last week. Waiting for final pathology report. At what point did you consider yourself cancer free? I still have my flap procedure operation in November and oophorectomy after that so still going through "procedures". [...]

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23 hours ago · @mortose · TNBC...now what?

I was diagnosed with TNBC in July 2016, stage 1B. Had lumpectomy in August, 2016, clear margins, no lymph glad involvement. Had five months of chemo--1 TC (after which I was so ill the protocol was changed to C alone and then Taxol alone) then 3 Cytoxan, then 9 weeks [...]

Posted by @mommaburgoon, 23 hours ago

I feel your uneasiness. My oncologist has never given me a scan and it has been 7 years. Her reasoning is that until I report specific symptoms….then I will be stage 4, I don;t need a scan. Trouble is I had positive lymph nodes, so I have been uneasy for

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2 days ago · @mchusid · Denied Zejula?

HAVE YOU BEEN DENIED THE DRUG ZEJULA FOR THE TREATMENT OF OVARIAN CANCER IN REMISSION OR RELAPSE? We are accepting cases involving individuals who have been denied insurance approval for the drug Zejula for ovarian cancer in remission or relapse. Call (954)340-2200 Ritter Chusid, LLP Coral [...]

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2 days ago · @jkoltun · Stent in ureter

Anyone who had the surgery in pelvis to remove cancer have scar tissue complications resulting in a stent needing to be out in a ureter? [...]

Posted by @pennys, 2 days ago

I had one during my OVCA IIIC surgery and honestly didn’t notice any difference. As a matter of fact…I forgot about it and finally had it removed…in Dec 2017… No pain, no discomfort…was fine. Removed in the office n I watched on a computer screen…was out in seconds. Scar tissue

Liked by Pat1601

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2 days ago · @shansharone · Lynch Syndrome pms2

How important is a hysterectomy and removal of the ovaries with lynch syndrome pms2. I am post menepausal with no pain and am cancer free at this time. I have a hard time have such a major surgery when there is nothing wrong at this time. I understand preventative....but how [...]

Posted by @shansharone, 2 days ago

Yes I talked to a genetic counselor. They said no rush but my doctor s eems to think that preventative is the eay to go.

Liked by Pat1601

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2 days ago · @shansharone · Lynch Syndrome pms2

How important is a hysterectomy and removal of the ovaries with lynch syndrome pms2. I am post menepausal with no pain and am cancer free at this time. I have a hard time have such a major surgery when there is nothing wrong at this time. I understand preventative....but how [...]

Posted by @shansharone, 2 days ago

Yes I talked to a genetic counselor. They said no rush but my doctor s eems to think that preventative is the eay to go.

Liked by Pat1601

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2 days ago · @57partnership · Nashville-need surgeon recommendations

Hi All, I'm sorry you are all here. My mother was diagnosed with BC yesterday. She lives in a small town and I live in Nashville, so we are looking for surgeon recommendations in this area. Thanks in advance for your help! [...]

Posted by @57partnership, 2 days ago

Thank you!

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30 minutes ago · @bernlo58 · Zejula

Hi Ladies, Wondering how any of you that are currently taking Zejula are doing. I am currently on hold with it for the 2nd time due to low platelets and hemoglobin. This time they reduced the dosage to 200 mg hoping that would make a difference but after 3 [...]

Posted by @pennys, 30 minutes ago

Why no blood transfusions with a low hemoglobin?

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1 day ago · @cghill · 3rd Recurrence continued...

Just went to doctor on Friday my latest CT scan afteer 2 rounds of doxyl show a decrease in some areas and stability in others so doc says thats a good thing so we continue with doxyl for 2 more rounds,then another CT Scan. Side effects so far have not [...]

Posted by @caroldrake, 1 day ago

Cghill, it is definitely a tough emotional journey. I have felt the same way that you expressed in your post. It is hard to always stay upbeat and strong for our loved ones. I recently started seeing a counselor so that I could talk about my feelings to someone who

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1 day ago · @aliceko · Recovering from surgery & continuing with treatment

My drain was removed today after unilateral mastectomy with sentynel biopsy and tissue expander placement! Yeaah! I had it for 3 long weeks. Very happy to have it removed. Whats next? Saw my oncologist today, negotiated no additional chemo (because of the complete response )! Just herceptin and perjeta (for [...]

Posted by @aliceko, 1 day ago

Thank you mairs, i have a tissue expander, it doesn’t get damaged by radiation, but adds 7 months on…until it can be exchanged for a silicone one. That sounds like a long time. Honestly, i still can’t believe this thing is in me. Yuck. Denial.
And radiation risks were reviewed

Liked by Annemarie

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Thu, Jul 13 5:52pm · @cancerconnect · Expert information and Q&A on ovarian cancer clinical trials

Now Available! [...]

Posted by @cancerconnect, Thu, Jul 13 5:52pm

Liked by megm

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4 days ago · @kjones · Mass Confusion

After several years of the generic symptoms you hear about... Finally convinced one of my doctors that something was very wrong. (That I was urinating blood kind of boosted my argument.) A CT was done. They found my left ovary (should have been removed during a previous surgery for [...]

Posted by @brenda123, 4 days ago

I would see a gynecologic oncologist if you haven’t already. It’s best to get this completely checked out, especially with your history of LMP. I had borderline first and it turned into low grade. I don’t want to scare you, but it isn’t likely that being peri-menopausal rather than premenopausal

Liked by Pat1601, CNancy

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9 hours ago · @aclcrop · BRCA 2 Positive

Hello I am 61 years old and just finishing up chemo for Fallopian Tube Cancer. I recently also tested positive for BRCA2. I am not seeing the geneticist till mid August. Does anyone else in my age group have this genetic marker who also had ovarian cancer. Just wondering what [...]

Posted by @blizzardbaby, 9 hours ago

Yes, both the Fallopian Tube Cancer and Ductal Carcinoma, in situ were both found because I had prophylactic surgery, after finding I carried a BRCA2 mutation. (My sister first sought testing due to our extensive maternal family history of cancer). Both cancers were microscopic and only detected after surgery when

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Fri, Jul 14 1:16am · @sburkey1946 · Vocal Cord Paralysis

I have been undergoing chemo now since January. Last month I noticed my voice started sounding weak. Now I can't speak much above a whisper. I went to an ENT and he said it's possibly nerve damage. I did have my chest lining scraped in January. Is it possible to [...]

Posted by @carolcowan, Fri, Jul 14 1:16am

Sandy,
Please let me know what the scan shows. From what I read online about it, the few people this happens to all got their voice back when chemo was done. I don’t know how many more times you’ll get it, but if it’s driving you crazy, there are devices

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Thu, Jul 13 8:28am · @swesthoff · Update

I thought I would give y'all an update on how my clinical trial is going. I had my 5th infusion Friday the 7th. They did a CA 125 just prior and it was 30. Needless to say I'm pretty happy about that. I also had a CT and it showed [...]

Posted by @caroldrake, Thu, Jul 13 8:28am

I did the same thing. I chose a cynical trial over Doxil. (I did have two sessions of Doxil.) My oncologist said that I will always have Doxil as an option if the clinical trial doesn’t work. I am wishing you continued success with your trial.

Liked by CNancy, Pat1601, megm

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The Lynne Cohen Foundation is dedicated to helping women pre-vive, survive, and thrive in the face of increased breast and/or ovarian cancer risk. Lynne Cohen Preventive Care Clinics at USC Norris Comprehensive Cancer Center, UAB Birmingham, and NYU Langone Medical Center offer an innovative multidisciplinary and team approach to preventive care. This online community is here to support you no matter where you are in your journey with breast and/or ovarian cancer, whether you be at risk but otherwise healthy, facing a diagnosis, in the midst of treatment, or healing. This is group for women and their families to connect and learn. Please share your story and reach out to others who tell theirs. Get started by introducing yourself! (Name, location, favorite movie, and what brings you to the conversation).

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