5 hours ago · @michael79 · Breast cancer grade 2, one week after the first chemotherapy

It's now one week after my wife went though her first chemotherapy and she has flu, she has tonsoles too. Does this call for doctor check or can be dealt with from home. Need advise. [...]

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1 day ago · @tlvanhorn · Is Anyone Taking Niraparib (Zejula)

Good morning everyone from rainy Northern Virginia. I have not posted in some time. May/June have been crazy months. I completed chemo on May 11th. I am glad that is over. The month of June has been super busy. On June 4th I had a CT scan. Waiting to get [...]

Posted by @lcondon, 1 day ago

Hi Theresa, I’m currently on Zejula. I was very frightened of beginning it.I started in May and was taking 300 mg but my platelets and hemoglobin wouldn’t cooperate, so after I was off of it for three weeks I restarted at 200mg. It appears my hemoglobin is better but my […]

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2 days ago · @blueocean · Zejula

Hello Ladies... Been on this drug close to a year. Side effects are now rearing its ugly head.. Wondering if anyone else are having side effects late into their treatment.. [...]

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2 days ago · @baseball · CBD

I am writing to ask if any one in this group has tried CBD or hemp oil to help with treatment problems like nausea and fatigue [...]

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3 days ago · @yucca100 · Stage 111 ovarian cancer with a colostomy .

My tumor attached itself to the colon so had a colostomy. The doctor said they got it all and after 6 treatments of chemo no sign of cancer. But, still anxious about recurrence and if I am eligible for a reversal. Anyone have this experience? [...]

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4 days ago · @HesterBIDMCModerator · Managing Anxiety

Unfortunately, anxiety always accompanies cancer. Managing these difficult feelings is the topic of two recent blogs. Here is a link: https://www.bidmc.org/about-bidmc/blogs/blog-landing/living-with-cancer/2018/06/considering-and-managing-anxiety-i Please read them and then come back here and share your best strategies. [...]

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1 day ago · @HesterBIDMCModerator · Managing Anxiety

Unfortunately, anxiety always accompanies cancer. Managing these difficult feelings is the topic of two recent blogs. Here is a link: https://www.bidmc.org/about-bidmc/blogs/blog-landing/living-with-cancer/2018/06/considering-and-managing-anxiety-i Please read them and then come back here and share your best strategies. [...]

Posted by @brenda123, 1 day ago

If only we could erase the feelings of fear and anxiety, we'd be so much better able to face what we have to deal with.

I'd be curious to know how many of us successfully use tools like meditation, exercise, and support medications like Ativan, Zoloft, etc. to keep […]

Liked by Patty059, Pat1601

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5 days ago · @stefonics · Recurrent ovarian cancer -- Adoptive T Cell Therapy?

My wife has stage III C ovarian, primary peritoneal cancer and it is recurrent, she is starting a clinical trial here in Canada. However, I came across an article on adoptive T Cell Therapy and would like to know more about it. It sounds very promising, although it was a [...]

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3 days ago · @chrismalossi · Seeking Onc. with knowledge of Granulosa Cell Tumor (a rare OVCA)

I've had four recurrences of Granulosa Cell Tumor of the ovary and seeking a second opinion. I have found that no organization will make a recommendation but will tell me whose done research, etc. and I do have eleven names but I want to beat down the bushes to find [...]

Posted by @chrismalossi, 3 days ago

Thank you so much for checking into that for me. I'll check him out and add him to a few suggestions I have for my doc on Monday. Thanks! […]

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1 day ago · @allisonalaine · Resistance to Taxil and Carbo

I found out last week that I am resistant to Taxil and Carbo and I'm halfway through my initial treatment. The plan is to switch me to Dioxl and hope I respond well to it. I was caught off guard because I had a CT scan in April which showed [...]

Posted by @allisonalaine, 1 day ago

Thank you Pat and yes, the tumor markers I'm referring to are the CA-125. I'll be interested to see if they decreased and the decision is made to stay with Carboplatin. I had one desensitization treatment but I'll need to go through that process again if I get Carboplatin since […]

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5 days ago · @halgen · halgen toh

COORDINATOR [...]

Posted by @pat1601, 5 days ago

halgen,

Welcome to the family! […]

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3 days ago · @wendyp · Changes in periods following breast cancer and reconstruction surgery

Has anyone else experienced changes in their normal menses schedule following breast surgery without drug use or chemo? I am 40 and my periods have always been regular. I had bilateral mastectomy this past September and implants placed in December. Since December I have had some light irregular bleeding in [...]

Posted by @beglad28, 3 days ago

That's great! I hadn't heard of that. […]

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Sun, Jun 17 12:46pm · @ratna · Lynparaza

My Oncologist switched from Ibrance to Lynparaza a month ago. Anyone who has been on it can share their experience. Thank You! [...]

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1 day ago · @trishb · How to Move Forward

Hey, I recently been diagnosed with triple negative breast cancer and the cancer is in one lymph node. This diagnosis came two months after I had a hysterectomy for endometrial cancer, which was Stage 1A. According to the genetic testing, there is not known genetic link for my cancer. [...]

Posted by @sewhitman, 1 day ago

You are actually living every cancer patients worst nightmare—a reoccurance. I recently had a reocurrence of breast cancer after 11 years. I am trying not to let it take over. I have a strong faith in God which has given me great comfort as well as a supportive family. I […]

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6 days ago · @motherchicken · Letrizole side effects which ones are serious

I am on 2.5 Letrizole I started 14 days ago. After a couple days I had dull headache and slight nausea but nothing to bad. Figured Id give it some time. Yesterday started having flu like symptoms but it passed pretty quickly. This morning I woke up with hot face [...]

Posted by @HesterBIDMCModerator, 6 days ago

I am just seeing this on Monday, so you have already made a decision re waiting. These symptoms may or may not be related to Letrozole; you may also have a "bug" of some kind. In my decades of experience working with women taking one of the AIs, a few […]

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The Lynne Cohen Foundation is dedicated to helping women pre-vive, survive, and thrive in the face of increased breast and/or ovarian cancer risk. Lynne Cohen Preventive Care Clinics at USC Norris Comprehensive Cancer Center, UAB Birmingham, and NYU Langone Medical Center offer an innovative multidisciplinary and team approach to preventive care. This online community is here to support you no matter where you are in your journey with breast and/or ovarian cancer, whether you be at risk but otherwise healthy, facing a diagnosis, in the midst of treatment, or healing. This is group for women and their families to connect and learn. Please share your story and reach out to others who tell theirs. Get started by introducing yourself! (Name, location, favorite movie, and what brings you to the conversation).

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