My recent Pet Scan for ovarian cancer with BRCA 2 mutation showed no activity and my doctor would like me to start Lynparza to delay recurrence. I have stage 4, grade 3 ovarian cancer only because the markers on biopsy suggest it with no known masses evident. It showed up [...]
I’ve had this mysterious rash or defined bumps appear on my torso, legs, and arms. Just curious if anyone experienced this before being diagnosed. My doctor called me the most interesting patient of the week. Not sure that’s a title I want. He ran some labs and prescribed steroids and [...]
Went for u/s and bilateral biopsies yesterday but they were unsuccessful finding 4mm & 6mm masses. Interesting because my initial bx that diagnosed my cancer was 3mm......anyway......so now I’m scheduled for bilateral MRI guided biopsy. Just wondering if anyone has anything to say about that procedure? Now this pathology report [...]
First recurrence of OV3C after 18 month remission - check, Surgery to remove tumor and 2 lymph nodes - check, pathology report shows metastatic cancer in lymph node - check, Got my staples out day before yesterday - check, incision popped open a bit yesterday got it steri-stripped shut again [...]
Tue, Nov 14 8:35am · @snewtjohn · Anyone had pulmonary embolisms with Ibrance and Letrozole?
I was in a trial for Ibrance for 2 years. After it ended, I had blood clots in both lungs. The doctor does not think it was drug related, but I do. Anyone else had clots? [...]
Sun, Nov 12 5:19pm · @cancerconnect · Webinar on Coping with Fear of Recurrence Now Available!
I think my sister feels put upon due to being left with the extraordinarily stressful job of preparing my parents' house for sale. My dear parents passed away within eight months of each other, my father having passed only eight weeks ago, two weeks before the discovery of my reoccurence. [...]
Arrived to Oncology Office for visit, Sun seemed to hit me prior to entering bldg and I immediately felt weak all over, had to learn on counter to sign in. I entered elevator to go to second floor but couldn't remember if I pushed button or not before passing out [...]
My WBC has risen to 12.7. Oncologist not concerned. I note my neutrophils have tripled from 4,400 to 11,700 and eosinophils are low. Can't reach anyone at the oncologist office nurse said results were pertfect except WBC a little high. Don't know who to call? I'm concerned about the sudden [...]
Good evening I asked my oncologist to do a CBC as I'm so exhausted all the time. He said I may be anemic. Well no one got back to me with results. I called the office and the nurse said my results were perfect. However my WBC was 12.7. She [...]
Sat, Nov 11 10:21pm · @djr1102 · Just diagnosed, anyone with a change in diagnosis after MRI?
Hi, I’m new here.....unfortunately. Just diagnosed last week with a small grade 1 invasive ductal carcinoma. Now I just had MRI report showing 2 more suspicious masses, 1 on EACH side, larger than my diagnosed mass. Scheduled for bilateral u/s and biopsies on the 14th. I’ve had one appointment with [...]
The Lynne Cohen Foundation is dedicated to helping women pre-vive, survive, and thrive in the face of increased breast and/or ovarian cancer risk. Lynne Cohen Preventive Care Clinics at USC Norris Comprehensive Cancer Center, UAB Birmingham, and NYU Langone Medical Center offer an innovative multidisciplinary and team approach to preventive care. This online community is here to support you no matter where you are in your journey with breast and/or ovarian cancer, whether you be at risk but otherwise healthy, facing a diagnosis, in the midst of treatment, or healing. This is group for women and their families to connect and learn. Please share your story and reach out to others who tell theirs. Get started by introducing yourself! (Name, location, favorite movie, and what brings you to the conversation).