4 days ago · @candokid · New

Hello, I am a Newby here. I had a total abdominal hysterectomy with optimal debulking almost 12 weeks ago. Pathology came back stage IIIa serous papillary carcinoma (low grade). Apparently, this type is resistant to "traditional" chemo. I am waiting for genetic testing to come back before we determine definite [...]

Posted by @candokid, 4 days ago

Thank you so much for your response! So sorry to hear of your challenges. I hope the new treatment helps you. I understand the anxiety associated with not being on a treatment while the cancer spreads. That is my biggest fear right now as I wait for results of genetic

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5 days ago · @Tinkerbell · Lymphdema

I developed lymphdema from a clogged lymph nose in my groin due to recurrence of cancer, has anyone ever experience this before? [...]

Posted by @Tinkerbell, 5 days ago

Pat,
LOL that would be something that would happen to me. I took your advice n went on the internet and got a certified lymphdema therapist near me. I was happy that they are taking me tomorrow to be evaluated. (A little scared – don’t know why) I too felt

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6 days ago · @lashio · Encouragement

I just finished round 6 and ca still high 455. Dropped from 3000 originally and has trended down the whole time. Dr said that he hasn't experienced it not to be within normal range due to slow drop. He's encouraged that he feels cancer may be gone but ca not [...]

Posted by @pat1601, 6 days ago

Don’t worry. Sometimes it doesn’t drop for 2-3 treatments and then the next treatment it drops a great deal. CA125 can be tricky. It has done that to me more than once, but its still an indicator for me.

Congrats on your daughter’s graduation!!!

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5 days ago · @aliceko · Metal taste in my mouth. Any success?

I having a nasty metal taste in my mouth. Anybody had that? I tried a lot, brushing my mouth right before eating, rinsing my mouth, eating bland foods, eating chicken instead of beef ( actually beef tastes better to me). Even water itself is horrific taste wise. I will try [...]

Posted by @aliceko, 5 days ago

Yeeeees! I ate chicken last night and it tasted ok to eat. My taste buds must be regenerating. Its not all back, but some is good too.
I tried the plastic utensils in the begining, but later i can eat something with my bare hands and sour nasty taste is

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5 days ago · @aliceko · Chemo: my fingers not working well, nail beds inflamed. Anybody else?

Hi. I was doing so well with my taxol chemo 12 weeks regimen - working, being a mom to my two small kids, the usual strong crap we are being fed (me anyways) and suddenly my fingers go numb when i sleep, they hurt me all day long, my nail [...]

Posted by @aliceko, 5 days ago

The neuropathy is getting better! Thank God!

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Tue, May 16 11:49am · @megm · NOCC Resources

Check out these helpful resources from the NOCC: http://ovarian.org/news-resources-separator/nocc-resources [...]

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10 hours ago · @snowgirl · Looking for recommendations

I went to the Drs on Thursday, just prior to my chemo appt, and got some terrible news. I had been having some symptoms (similar to when I was initially diagnosed in January) and the Dr ordered a CT scan. It came back that 12 weeks into chemo, my cancer [...]

Posted by @patricia059, 10 hours ago

@carolcowan You are so right. I have recurrent oc and I’m carbo platinum resistance. I’m currently in a bio- therapy trial which in layman’s terms puts your immune system on steroids to fight the cancer cells. My recurrence consisted of 2 implants near the spleen and the liver. After 2

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Mon, May 15 7:55pm · @helena · Internal Abdominal Sensitivity 8 Months after Surgery

I had a complete hysterectomy, with ovaries, Fallopian, tubes, uterus, omentum and part of cervix removed in Sept. 2016. I still have abdominal sensitivity, internal, after 8 months. My abdomen is very sensitive to pressure , primarily on the left side. This means I cannot wear anything at all constricting, [...]

Posted by @helena, Mon, May 15 7:55pm

Thank you for your advice. I will definitely continue to monitor my symptoms and bug my doctors as need be. I have been wearing pull on pants during the winter and will switch to maxi skirts and dresses as the weather gets warmer. My legs are also not something to

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Wed, May 10 6:08am · @misterbillk · Dr. Gonzalez protocol, fact or fiction?

Claims of long survival rates for breast and pancreatic cancer patients, including metastatic disease, have been made in the book Conquering Cancer. Use of pancreatic enzymes, strict diet, and body cleansing techniques, were touted as effective alternatives to conventional treatments. Interested in hearing first hand accounts with this experience... [...]

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Sun, May 21 7:43am · @meds57 · Borderline tumors

Does anyone have experience with borderline tumors? My daughter had one ovary and tube removed a few months ago. Now there is a cyst on the other ovary that looks suspicious. Gyno/oncologist surgeon wants to remove the cyst. My daughter is 29 and wants to become pregnant. Any experience, suggestions, [...]

Posted by @meds57, Sun, May 21 7:43am

Carol
Thanks for your reply. My daughter did look into egg freezing but was advised that the process of doing that could spread the cancer….
M

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Sat, May 6 7:20am · @amyjoheavin · Dental work while on chemo

I am on maintenance Avastin and my doctor says I have to stop for a root canal. I can start back up after weeks. I'm not comfortable with this. Has any one else had this issue? [...]

Posted by @amyjoheavin, Sat, May 6 7:20am

Thank you, mine is a root canal. I was told off 4 weeks before the dentist then can go back on after 2 or 3 weeks if I have healed ok.

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Mon, May 8 6:58am · @khirst · Recurrance

Has anyone recurred within 3 mos of remission. my CA125 are trending up but the CT scan is clean. PET scan likely next step. I had PPC. What is the typical next step in treatment etc. just looking for some hope. I am obviously so disappointed as my hair just [...]

Posted by @pat1601, Sun, May 7 4:30pm

Khirst, I think you will find that many of us have a recurrence within a few months after completing a treatment. I’ve come to believe it’s not uncommon.

I’d not worry about the hair because not all chemo causes hair loss. I lost mine in the first chemo treatment. I’ve had

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Mon, May 1 11:02am · @charles · Precision Cancer Medicines & Ovarian Cancer

Several new precision medicines have recently become available to treat ovarian cancer and there are more on the way. Here is a link to a new resource dedicated to providing current information on precision medicines as they become available. www.oncoprecision.org In addition; genomic testing to participate in precision medicine clinical [...]

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6 days ago · @kaj7 · Avastin Headaches-hi, I started avastin last week. I've had a terrible headache [...]

Avastin Headaches-hi, I started avastin last week. I've had a terrible headache for three days. I know this can be a side effect. My bp has gone up a bit, but not in the danger zone (nurse said anything over 150/90 in an issue). Any words of advice? I've taken [...]

Posted by @corymccarty, 6 days ago

Try taking Claritin. I do and have not been bothered by headaches. I took it all through treatment the last time I was on Avastin. I’m seeing how it goes with just the first week this time.

Liked by KJ

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Wed, May 3 8:11pm · @tracyoutman · I recently started bleeding again two months post surgery. I saw my [...]

I recently started bleeding again two months post surgery. I saw my doctor two days ago and apparently the incision my vagina opened and part of my bowel is trying to slip through. She is hesitant to do surgery while I'm going through chemo, so we don't have a plan [...]

Posted by @kline, Wed, May 3 8:11pm

Tracy,
I’m also so glad. Take it easy while this heals.
Kathy

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The Lynne Cohen Foundation is dedicated to helping women pre-vive, survive, and thrive in the face of increased breast and/or ovarian cancer risk. Lynne Cohen Preventive Care Clinics at USC Norris Comprehensive Cancer Center, UAB Birmingham, and NYU Langone Medical Center offer an innovative multidisciplinary and team approach to preventive care. This online community is here to support you no matter where you are in your journey with breast and/or ovarian cancer, whether you be at risk but otherwise healthy, facing a diagnosis, in the midst of treatment, or healing. This is group for women and their families to connect and learn. Please share your story and reach out to others who tell theirs. Get started by introducing yourself! (Name, location, favorite movie, and what brings you to the conversation).

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